What's more frustrating than a child fighting sleep?

...knowing there is another child sleeping 10 feet away while your child is fighting sleep. Sorry roomies.

We should be going home today, for a few days at least. They placed an NG tube yesterday. That is a temporary tube through the nose to get us to Monday's surgery. It's the same way she ate in the NICU and I think she remembered. She was ticked. She has pretty much stopped taking anything by mouth and her coordination with swallow is dangerously off. We are getting a swallow study today to see if she is aspirating while she is eating. This will tell us if we can even attempt oral feedings at home. It is possible that after we get her G-tube placed and get her home and back on track with nutrition that things will turn around. There are lots of other possibilities, but we are hoping that is the direction we are headed.